OUR TEAM

Leadership Team

Michelle Torres
Founder

Michelle has a passion for rare disease advocacy as Mom of a rare child and Founder of Defying Rare. She brings 12 years of experience as the founder and President of an online retail site.

Darcene Bower
Events Coordinator

Darcene is a Mom, wife and advocate for patient healthcare and disability. She has extensive experience as a volunteer for the Pancreatic Cancer Network as an events coordinator.

Rhonda Smith-Williams
Volunteer Coordinator

Rhonda is a former nurse with a love for life. She has 3 children and is an independent woman entrepreneur who has a vibrant personality and truly enjoys connecting with people.

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