top of page
Michelle has a passion for rare disease advocacy as Mom of a rare child and Founder of Defying Rare. She brings 12 years of experience as the founder and President of an online retail site.
Darcene is a Mom, wife and advocate for patient healthcare and disability. She has extensive experience as a volunteer for the Pancreatic Cancer Network as an events coordinator.
Rhonda is a former nurse with a love for life. She has 3 children and is an independent woman entrepreneur who has a vibrant personality and truly enjoys connecting with people.
SIGN UP FOR EMAIL UPDATES
Learn how you can take part in supporting Defying Rare .
bottom of page