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There are 7,000 rare diseases.
Half of rare patients are children.

Help bring comfort to children with a rare disease or other pediatric disorder through our Golden Gifts program.

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Hope. Friendship. Healing.

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Through her daughter’s 20 year journey with a rare disease, our Founder knows first hand the challenges that rare patients and families face. Hear about our story.

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We’re just getting started! Learn more about the Golden Gifts program and our future therapy and service dog access program.

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Volunteers are a critical part of our mission and help power every aspect of our program. Learn more about available opportunities.

Our Mission

To enrich the lives of children who have a rare disease or other pediatric disorder through our Golden Gifts program and by helping expand access to therapy and service animals for the patients we serve.

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Learn how you can take part in supporting Defying Rare.

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