There are 7,000 rare diseases.
Half of rare patients are children.

Help bring comfort to children with a rare disease or other pediatric disorder through our Golden Gifts program.

Donate

Hope. Friendship. Healing.

Our Story

Through her daughter’s 20 year journey with a rare disease, our Founder knows first hand the challenges that rare patients and families face. Hear about our story.

Our Work

We’re just getting started! Learn more about the Golden Gifts program and our future therapy and service dog access program.

Get Involved

Volunteers are a critical part of our mission and help power every aspect of our program. Learn more about available opportunities.

Our Mission

To enrich the lives of children who have a rare disease or other pediatric disorder through our Golden Gifts program and by helping expand access to therapy and service animals for the patients we serve.

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Learn how you can take part in supporting Defying Rare.

There are 7,000 rare diseases. Half of rare patients are children.